Autism Society of Hawaii does not endorse, promote or recommend any specific programs, services or methods of treatment for Autism Spectrum Conditions and strongly encourages individuals, their family and/or caregivers to carefully consider the information available and individual factors when making choices for services.
To search nationwide for services or providers, please visit the Autism Society’s online database: http://www.autismsource.org.
We are currently in the process of reviewing and updating our resources list. Please email us at (808) 342-0364 if you are looking for specific resources.
- IDEA Decisions – (Updated July 1, 2018) – Here is an appendix and a listing of IDEA decisions prepared by former ASH Chapter Vice-President John Dellera.
- July 23, 2012 – Sample Educational Representative Form: Download an Educational Representative Form prepared by former ASH board member John Dellera.
- Summary of Transfer of Rights Options – This is a summary of the different methods to transfer rights in Hawaii. It also includes a chart to help determine what is required. It says parents should think about this at least one year before the age of majority but we encourage parents to think about this much sooner.
Prevalence – CDC Information April 27, 2018
- About 1 in 59 children have been identified with autism spectrum disorder (ASD) according to estimates from CDC’s Autism and Developmental Disabilities Monitoring (ADDM) Network. [Read article]
- ASD is reported to occur in all racial, ethnic, and socioeconomic groups. [Read summary] [Read article]
- ASD is about 4 times more common among boys than among girls. [Read article]
- Studies in Asia, Europe, and North America have identified individuals with ASD with an average prevalence of between 1% and 2%. [Data table]
- About 1 in 6 children in the United States had a developmental disability in 2006-2008, ranging from mild disabilities such as speech and language impairments to serious developmental disabilities, such as intellectual disabilities, cerebral palsy, and autism. [Read summary]
Identified Prevalence of Autism Spectrum Disorder
ADDM Network 2000-2014 Combining Data from All Sites
|Surveillance Year||Birth Year||Number of ADDM Sites Reporting||Combined Prevalence per 1,000 Children (Range Across ADDM Sites)||This is about 1 in X children…|
|1 in 150|
|1 in 150|
|1 in 125|
|1 in 110|
|1 in 88|
|1 in 68|
|1 in 69|
|1 in 59|
- Early Intervention 0-3 (EI)
- Department of Education (DOE)
Potential services if a child qualifies: (all in the IEP, they receive services if the assessments and team determine there are deficits, the amount depends on the child’s need, all kids individual)
- One to one adult support (usually ST or EA, could be in school, after school, on the weekend, whenever and/or wherever there is a need and there are goals addressed in the IEP)
- Behavioral Intensive Support (BISS)
- Autism Consultation Teacher (ACT – provides consult with the SPED teacher)
- School-Based Behavioral Health Therapy (SBBH) (Individual therapy, could be a counselor but is usually SBBH)
- Speech-language therapy (SLP)
- Occupational Therapy (OT – fine body motor movements)
- Physical Therapy (PT – large body motor movement)
- Department of Health (DOH)
- Department of Developmental Disabilities (DDD) – Personal Assistance/Habilitation (PAB)
- Medical Insurance – QUEST under 21, HMP and PPO under 14, other requirements
- Other Community Resources
- Assistive Technology Resource Centers of Hawaii (www.atrc.org)
- Autism Society of America (ASA)
- Autism Speaks
- Children’s Community Council (CCC)
- Hawaii Autism Foundation (HAF)
- Hawaii Disabilities Rights Center (HDRC)
- Hawaii State Council on Developmental Disability (HSCDD) CDC Issues Guidance for HCBS Providers
Recently, the Centers for Disease Control and Prevention issued guidance for a variety of HCBS workers providing information on COVID-19’s impact on their work, their clients, and how to address mental health needs.
- Job Accommodation Network – A Resource about workplace accommodations and the Americans with Disabilities Act (ADA)
- Learning Disabilities Association of Hawaii (LDAH)
- National Autism Association (NAA)
- National Council on Severe Autism (NCSA)
- Sleep Issues in Autism
- Special Medical Needs Payment Assistance
A Special Medical Needs Pilot Program has been approved by Public Utilities Commission – Joann Markle, Director, Customer Ombudsman for Hawaiian Electric has informed us that the Public Utilities Commission issued Decision and Order No. 34467 approving the Companies’ proposed Special Medical Needs Pilot Program (Transmittal No. 17-01) earlier this week. The program shall take effect on April 1, 2017, with a sunset date of March 31, 2019, and will be available to the first 2,000 eligible customers.
- Special Needs Hawaii Newsletter
- Special Parents Information Network (SPIN)
- TACA (The Autism Community in Action)The Autism Journey Blueprints were created as a quick introduction reference guide for families on the autism journey. The Autism Journey Blueprints is copyrighted by The Autism Community in Action (TACA). They are not for resale.
- Complete Autism Journey Blueprints: click here to download the PDF
- AJ Blueprints – Years 1-3: click here to download the PDF.
- AJ Blueprints – Medical Intervention: click here to download the PDF
- AJ Blueprints – Dietary Intervention: click here to download the PDF
- AJ Blueprints – Educational: click here to download the PDF
- AJ Blueprints – Finance: click here to download the PDF
- AJ Blueprints – Home Life: click here to download the PDF
- AJ Blueprints – Living in a Toxic World: click here to download the PDF
- AJ Blueprints – Teens and Adults: click here to download the PDF
- Resource for families thinking their child may have autism
- Keeping Your Kids Safe – Wandering/Elopement and Autism
- The Arc in Hawaii
- Work Now Hawaii
- Training Modules for Autism – Using Evidence-Based Practices for Learners with ASD – Five Free Online Modules
Autism Focused Intervention Resources and Modules (AFIRM), an extension of the National Professional Development Center (NPDC) on Autism Spectrum Disorder (ASD), has released five free online modules focused on how practitioners can use evidence-based practices for learners with ASD. Each module includes case examples that demonstrate the practice in use, a multimedia presentation of content with audio and video clips, interactive assessments, and free professional development certificates. Currently, five modules are available and additional modules are on the way.
- Autism Spectrum Disorder: An Overview for Educators – Free Online Module
(August 2015) The IRIS Center released a free online module which provides information on the early warning signs of ASD, the difference between a medical diagnosis and an educational determination of ASD, the strengths and needs of children with ASD, key team members, how family members might be affected, and strategies teachers can use when working with children with ASD. It includes video examples, practice vignettes, and recorded interviews. For example, see this interview with Ilene Schwartz, who discusses strategies teachers can use in early childhood settings to promote the success of a child with ASD.
- ASD Strategies in Action: Autism Internet Modules
- Organization for Autism Research: The curriculum in a Box
The Kit for Kids program is designed to teach elementary and middle school students about their peers with autism. The kit is centered around an illustrated booklet entitled “What’s Up with Nick?”. This colorful, kid-friendly booklet tells the story about a new student, a boy with autism named Nick, through the eyes of a typical peer. The story teaches children that students with autism may think differently or need some accommodations, but all students are of equal worth and should be treated as such. You can use this program to increase awareness of autism among students from grades K-8. With greater knowledge of autism, our youth will learn to see the person first rather than focus on a classmate’s disability. By increasing students’ acceptance of
- Life Journey through Autism: Navigating the Special Education System
- Understanding Autism: Professor’s Guide DVD
- Department of Health Overview of Hawaii’s Application PDF – A PDF of the Department of Health update on persons that have (Individual Service Plans) ISP’s or their Caregivers during this period of shutdown.
- PowerPoint – Department of Health Overview of Hawaii’s Application – A PowerPoint of the Department of Health update on persons that have (Individual Service Plans) ISP’s or their Caregivers during this period of shutdown.
- Tri-County Agency Brochure – Pathway to Employment for Students with Developmental Disabilities Transitioning from High School.
- Increased Risks of Autism-Related Wandering During Holidays
- Special Needs Toys – Sensory Solutions at Home
- Family Caregiving Video Series: Mobility
The Home Alone Alliance is pleased to release its first series of family caregiver instructional videos. Developed by Alliance members — the AARP Public Policy Institute and the U.S. Veterans Administration, this initial series, seeks to provide family caregivers of those with mobility challenges simple, concrete instruction on a variety of topics.
- Webinars On Demand
- TippyTalk App
TippyTalk allows a person with a verbal disability to communicate by translating pictures into text messages, which are then sent to a family member or caregiver’s phone or tablet. This allows the person who is non-verbal to communicate and express a desire, want, need, or feeling.
- The Companion App
The Companion App is a 24/7 personalized aide for teens and adults with special needs. It uses Abby – our artificial intelligence avatar – to have real back-and-forth conversations with the user.
- Free Stuff for Adults with Disabilities / Special Needs
- 100 Day Kit For Newly Diagnosed Families with Young Children
- ASA Emergency Preparedness & Related Links
- Increasing Physical Activity Opportunities in Adults with ASD and ID: Surveying the Field
- Mindful Parenting Study
- New Research Opportunity for Mothers who have children with autism between the ages of 4 and 17 years old and parents who have a child with autism and another neurotypical child between the ages of 8-16 years are being sought for research.
- Autism/Asperger Vignettes #1
- Autism/Asperger Vignettes #2: The Story of Bobbie