Living with Autism

Autism Society of Hawaii logoAutism Society of Hawaii does not endorse, promote or recommend any specific programs, services or methods of treatment for Autism Spectrum Conditions and strongly encourages individuals, their family and/or caregivers to carefully consider the information available and individual factors when making choices for services.

To search nationwide for services or providers, please visit the Autism Society’s online database: http://www.autismsource.org.

We are currently in the process of reviewing and updating our resources list. Please email us at (808) 342-0364 if you are looking for specific resources.

Advocacy/Legal

  • IDEA Decisions – (Updated July 1, 2018) – Here is an appendix and a listing of IDEA decisions prepared by former ASH Chapter Vice-President John Dellera.
    • July 23, 2012 – Sample Educational Representative Form: Download an Educational Representative Form prepared by former ASH board member John Dellera.
    • Summary of Transfer of Rights Options – This is a summary of the different methods to transfer rights in Hawaii. It also includes a chart to help determine what is required. It says parents should think about this at least one year before the age of majority but we encourage parents to think about this much sooner.

Prevalence – CDC Information April 27, 2018

  • About 1 in 59 children have been identified with autism spectrum disorder (ASD) according to estimates from CDC’s Autism and Developmental Disabilities Monitoring (ADDM) Network. [Read article]
  • ASD is reported to occur in all racial, ethnic, and socioeconomic groups. [Read summary] [Read article]
  • ASD is about 4 times more common among boys than among girls. [Read article]
  • Studies in Asia, Europe, and North America have identified individuals with ASD with an average prevalence of between 1% and 2%. [Data table]
  • About 1 in 6 children in the United States had a developmental disability in 2006-2008, ranging from mild disabilities such as speech and language impairments to serious developmental disabilities, such as intellectual disabilities, cerebral palsy, and autism. [Read summary]
Identified Prevalence of Autism Spectrum Disorder

ADDM Network 2000-2014 Combining Data from All Sites

Surveillance Year Birth Year Number of ADDM Sites Reporting Combined Prevalence per 1,000 Children (Range Across ADDM Sites) This is about 1 in X children…
2000 1992 6 6.7
(4.5-9.9)		 1 in 150
2002 1994 14 6.6
(3.3-10.6)		 1 in 150
2004 1996 8 8.0
(4.6-9.8)		 1 in 125
2006 1998 11 9.0
(4.2-12.1)		 1 in 110
2008 2000 14 11.3
(4.8-21.2)		 1 in 88
2010 2002 11 14.7
(5.7-21.9)		 1 in 68
2012 2004 11 14.5
(8.2-24.6)		 1 in 69
2014 2006 11 16.8
(13.1-29.3)		 1 in 59

Learn more about the prevalence of ASD »
Learn more about the ADDM Network »

Community Resources

  • Early Intervention 0-3 (EI)
  • Department of Education (DOE)
    Potential services if a child qualifies: (all in the IEP, they receive services if the assessments and team determine there are deficits, the amount depends on the child’s need, all kids individual)
    • One to one adult support (usually ST or EA, could be in school, after school, on the weekend, whenever and/or wherever there is a need and there are goals addressed in the IEP)
    • Behavioral Intensive Support (BISS)
    • Autism Consultation Teacher (ACT – provides consult with the SPED teacher)
    • School-Based Behavioral Health Therapy (SBBH) (Individual therapy, could be a counselor but is usually SBBH)
    • Speech-language therapy (SLP)
    • Occupational Therapy (OT – fine body motor movements)
    • Physical Therapy (PT – large body motor movement)
  • Department of Health (DOH)
  • Department of Developmental Disabilities (DDD)  – Personal Assistance/Habilitation (PAB)

Education

  • Training Modules for Autism – Using Evidence-Based Practices for Learners with ASD – Five Free Online Modules
    Autism Focused Intervention Resources and Modules (AFIRM), an extension of the National Professional Development Center (NPDC) on Autism Spectrum Disorder (ASD), has released five free online modules focused on how practitioners can use evidence-based practices for learners with ASD. Each module includes case examples that demonstrate the practice in use, a multimedia presentation of content with audio and video clips, interactive assessments, and free professional development certificates. Currently, five modules are available and additional modules are on the way.
  • Autism Spectrum Disorder: An Overview for Educators – Free Online Module
    (August 2015) The IRIS Center released a free online module which provides information on the early warning signs of ASD, the difference between a medical diagnosis and an educational determination of ASD, the strengths and needs of children with ASD, key team members, how family members might be affected, and strategies teachers can use when working with children with ASD. It includes video examples, practice vignettes, and recorded interviews. For example, see this interview with Ilene Schwartz, who discusses strategies teachers can use in early childhood settings to promote the success of a child with ASD.
  • ASD Strategies in Action: Autism Internet Modules
  • Organization for Autism Research: The curriculum in a Box 
    The Kit for Kids program is designed to teach elementary and middle school students about their peers with autism. The kit is centered around an illustrated booklet entitled “What’s Up with Nick?”. This colorful, kid-friendly booklet tells the story about a new student, a boy with autism named Nick, through the eyes of a typical peer. The story teaches children that students with autism may think differently or need some accommodations, but all students are of equal worth and should be treated as such. You can use this program to increase awareness of autism among students from grades K-8. With greater knowledge of autism, our youth will learn to see the person first rather than focus on a classmate’s disability. By increasing students’ acceptance of
  • https://researchautism.org/resources/kit-for-kids/
  • Life Journey through Autism: Navigating the Special Education System
  • Understanding Autism: Professor’s Guide DVD

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